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Living well with kidney disease
Maxine Smith is a healthy, beautiful woman who lives life to the fullest. In fact, she is such a role model to women, mothers and all South Africans, that she made it into the top 7 finalists of Mrs United Nations in 2007. All of this even after her life was turned upside down …
“I am a kidney failure patient,” says Smith, who resides in Johannesburg with her family, without hesitation. Since March 2006 she has been on dialysis three times per week for four hours at a time. To change her dietary habits and to put so much time aside for dialysis was initially an overwhelming shock for this active woman who is a self confessed “Biker Chick” with the nickname “Mad Max”. But, she adds quickly, she soon discovered even having a life-threatening disease does not mean your life comes to a halt.
“I can honestly tell you that my life has changed for the better. At first my mind was in turmoil, but with the support of my family, friends, biking community, my kidney specialist and the Healthy Start Programme from National Renal Care (NRC), I soon made the mind shift that having kidney failure is not a death sentence. In fact, you can live well with kidney disease.”
How to live well with kidney disease
The first step is to go for regular check ups to detect Chronic Kidney Disease (CKD) as early as possible. “If detected early CKD can be treated, thereby reducing other complications,” asserts Noeleen Phillipson, CEO of NRC.
This is where the NRC Healthy Start Programme comes in. Smith still benefits from this programme today and it can help you just as it helped her to not only cope with CKD, but to live life it to the fullest.
The Healthy Start Programme, which is available at all NRC centres nationwide, is unique to NRC. It is a lifestyle management programme for patients at risk of developing end-stage kidney disease, including patients with a family history of kidney disease. The primary aim of the programme is to help the patient retain a high quality of life while remaining as healthy as possible.
Preventative strategies include:
Early detection and treatment
Meticulous hypertension control
Strict Glyceaemic Control
Anaemia management
Modification of diet and lifestyle changes
Psychosocial support
“Education and psychosocial counseling for patients and their family members play a key role,” adds Phillipson. “And even when dialysis is unavoidable, like in Maxine’s case, you can still live a meaningful life.”
Steps to take after being diagnosed with CKD
The first step after being diagnosed with CKD, is to get all the information relating to your specific kidney problem. “The next step is to make a mind shift that having CKD or being on dialysis is not a death sentence. This can be extremely hard, but with the love and support of your loved ones or even a support group for CKD patients you could be able to cope with the changes that this disease necessitates,” says Smith.
You need to meticulously follow the programme designed by your doctor to regulate your diet and exercise habits. “At first it is a big adjustment, but you will soon get used to it. The trick is to stick to it and to do what you can to still live a healthy, balanced lifestyle. It can be done!” says Smith.
If suitable undergoing a kidney transplant can also be an option. “The NRC will be able to advise and guide you on deciding whether to have a transplant. We will also be able to give you the necessary support before, during and after the procedure,” explains Phillipson.
The way forward
Make a conscious decision today that you will take care of your kidneys and that you will go for regular check ups in order to detect any kidney problems as early as possible. “Drink lots of water and do moderate exercise. In a nutshell: live a balanced lifestyle, even though it is not always easy. Remember, the choices you make today will influence your future health,” says Phillipson.
In Maxine’s case, even a healthy lifestyle could not protect her from kidney disease. “Never think it will not happen to you. Also remember to be even more cautious if you have a family history of kidney disease and to inform your doctor of this.”
Maxine’s ongoing mission
In between dialysis, “Mad Max” is back on her bike to raise awareness for kidney disease as far as she goes. “My advice is to keep your mind and emotional state as healthy and optimistic as possible. Having CKD and dialysis was not the end of my life and it need not be the end of yours. Be the best you can be, even with kidney disease.”
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